At the time of publishing this, it’s Rare Disease Day. This is a chance to talk about not just the rare conditions we have, but also aspects of our lives with having these conditions. In the past I talked about accessing treatment for common illnesses. This year I want to talk about confidence. When you’re […]

As we all know by now, I love to have a good chuckle about the things that people say to me. There’s this thing going round the blogging world at the moment where bloggers answer assumptions people send in about them. I thought this week I’d do this with a difference and talk about the […]

When I meet people, especially people older than me, even at a glance, they feel sorry for me. I can tell. I get the sympathetic look, bow of the head or worst still – a pat on the head. People think I’m sad, I’ve got a hard life and it must be so difficult being […]

Ever since I was little my parents have always made sure I was surrounded by friends. Our house would be the place to hang out, have turkey dinosaurs and smiley faces and just generally have a great time. Access wasn’t really something I was thinking about. Even outside of the house – a lot of […]

To be read in the tune of “when I’m 64” Dads getting older loosing his hair Don’t tell him there’ll be a row Let’s pretend he’s muscly and still looks young Birthday greetings hope you have fun Last week he was out till 11 o clock Then clung to the fridge Can’t drink like you […]