When I talk to people, and they find out that I love to chat all things disability – one of the first things people say is “you just don’t know what to say

At the time of publishing this, it’s Rare Disease Day. This is a chance to talk about not just the rare conditions we have, but also aspects of our lives with having these

As we all know by now, I love to have a good chuckle about the things that people say to me. There’s this thing going round the blogging world at the moment where bloggers

When I meet people, especially people older than me, even at a glance, they feel sorry for me. I can tell. I get the sympathetic look, bow of the head or worst still – a pat

Ever since I was little my parents have always made sure I was surrounded by friends. Our house would be the place to hang out, have turkey dinosaurs and smiley faces and just

To be read in the tune of “when I’m 64” Dads getting older loosing his hair Don’t tell him there’ll be a row Let’s pretend he’s muscly